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Deena
10-20-2007, 08:38 PM
Me and Tristan spent last night at the hospital, again :(... More headaches. I knew something was not quite right when we left the hospital, but could not seem to convince the doctor of that... Unfortunately he was the same one on call last night :P After arguing with him, I convinced him to admit Tristan for observation, since he was still having headaches, even though the doctor was convinced there was nothing wrong.

Well I am glad I did that! Today Tristan's actual doctor came in and did rounds, we spoke and now there is a game plan in action. He felt Tristan's shunt was over draining at this point, so he suggested adjusting the setting by a half step. (Rather than a full step like they did before)... Well we got to get the setting changed, and Tristan's shunt was supposed to be on 1.0, and turns out it was on .5! (in this case the lower the number the more it drains). So that totally explains why things were not right. The doctor put it on 1.0, and if he continues to have headaches we will go back to clinic and they will change the setting again, bumping it up another half step. If this ultimately does not work, then we have to start looking at the possibility that there is something bigger going on.

mzkellyb
10-20-2007, 08:56 PM
I hope the change in setting helps him! Poor kid, hope he's hanging in ok.

sinead
10-20-2007, 10:34 PM
Deena, he's been such a trooper! Glad you have a game plan now. Hopefully it'll help!

StaceyD
10-20-2007, 10:38 PM
I hope that the setting change provides Tristan quick relief from the headaches! Poor guy!

tamra
10-20-2007, 11:22 PM
I'm glad you got to see his regular doctor! I hate it when a doctor ignores what you are saying when you "feel" like something is wrong. Way to stand your ground! Hope the new setting works and he starts to get some relief from the headaches.

Paula
10-21-2007, 02:38 AM
Tristan is such a brave kid!! I hope the change is finally able to help him.

chloe
10-21-2007, 03:03 AM
Hope this will solve the problem! Congrats to him for being so brave!! (((Hugs))) to all of you!

Deena
10-21-2007, 11:11 AM
Well all last night, and this morning he seems GREAT! So that is good news, especially this morning since he got a good night's sleep last night :) Not a single headache, and at least for now he knows when he has one it just means a quick setting change, so he is more likely to tell me, rather than waiting till they are bad (he has been known to do that).

meems
10-21-2007, 11:47 AM
what a trooper he is (and you too, Deena). Glad the setting change helped.

Priscilla
10-21-2007, 06:53 PM
Glad last night was good for sleep......sorry this is going on... poor guy!!

jessie97
10-22-2007, 01:38 PM
So glad he is feeling better.

chloe
10-22-2007, 04:58 PM
So glad he's feeling better!

sinead
10-22-2007, 06:20 PM
Yay! I'm glad he's doing better!

AbbysMomma
10-23-2007, 10:32 AM
So glad he's feeling better. *fingers crossed* that the setting change did the trick. :)

Charla
10-23-2007, 11:22 AM
I'm so glad he's doing better! (((hugs))) I can't imagine going through all of this (for him or you!)