InLoveWithDOTS
07-22-2006, 08:45 PM
I received this letter from my daughter's basketball coach today and wanted to share it here with you all. I know that some individuals and companies are looking for a place to make worthwhile donations. I hope you will consider helping if you are able!
Good afternoon,
My sister Jeralyn, Mike and Taylor Frost also of Auburn NH, and the rest of our
family, greeted Cody Michael Frost into this world on July 21, 2001. The first
boy into our Cote family, we all celebrated such a cute, always smiling little
guy. On January 27, 2002, six months into Cody’s life and after noticing slow
development in him, Jeralyn and Mike were told by doctors at the Hitchcock
Clinic in Lebanon, NH that Cody suffers from a genetic disorder known as
Angelman Syndrome. Needless to say, our lives changed dramatically that day.
Angelman Syndrome (AS) is a genetic disorder caused by abnormal function of a
gene located in Cody’s 15th chromosome. Because of this, Cody is likely to be
severely handicapped, unless a cure is found. You can learn more about Angelman
Syndrome at www.angelman.org (http://www.angelman.org/). Angelman Syndrome is a rare disorder therefore
not many doctor’s have even heard of it nor have researched it.
Upon hearing this I began the process of starting Cody’s Quest, a non-profit
organization created to raise awareness and funds for the research and ultimate
cure of Angelman Syndrome. Since 2002, we have raised over $60,000 and have
donated about $35,000 of this to Boston Children’s Hospital for research
directly related to Angelman Syndrome.
On September 8 of this year, we are holding our 5th annual golf tournament at
Stonebridge Country Club. I attach a couple of items. First our current
newsletter. Second, the registration form. Third, a Hole Sponsor Form.
Finally, a Company donation form. If you would like to play, either single or
put a foursome in, please get back to me as soon as possible. For 4 years, we
have filled the course (144 golfers total) and have turned people away. If you
wish to make a donation, there is a form on the newsletter. If you have avenues
to corporate donations and/or corporate hole sponsors, these also are
appreciated.
I do hope you find it OK to send this to you. In this day and age, we all seem
to have our causes. This is mine. All I ask is that you do what you can.
Thank you so much.
Jamie
PS, you can learn more at www.codysquest.org (http://www.codysquest.org/).
Obviously the forms Jamie references aren't attached to this post, but if you are interested in reviewing any of them, feel free to email me at inlovewithdots@aol.com.
Good afternoon,
My sister Jeralyn, Mike and Taylor Frost also of Auburn NH, and the rest of our
family, greeted Cody Michael Frost into this world on July 21, 2001. The first
boy into our Cote family, we all celebrated such a cute, always smiling little
guy. On January 27, 2002, six months into Cody’s life and after noticing slow
development in him, Jeralyn and Mike were told by doctors at the Hitchcock
Clinic in Lebanon, NH that Cody suffers from a genetic disorder known as
Angelman Syndrome. Needless to say, our lives changed dramatically that day.
Angelman Syndrome (AS) is a genetic disorder caused by abnormal function of a
gene located in Cody’s 15th chromosome. Because of this, Cody is likely to be
severely handicapped, unless a cure is found. You can learn more about Angelman
Syndrome at www.angelman.org (http://www.angelman.org/). Angelman Syndrome is a rare disorder therefore
not many doctor’s have even heard of it nor have researched it.
Upon hearing this I began the process of starting Cody’s Quest, a non-profit
organization created to raise awareness and funds for the research and ultimate
cure of Angelman Syndrome. Since 2002, we have raised over $60,000 and have
donated about $35,000 of this to Boston Children’s Hospital for research
directly related to Angelman Syndrome.
On September 8 of this year, we are holding our 5th annual golf tournament at
Stonebridge Country Club. I attach a couple of items. First our current
newsletter. Second, the registration form. Third, a Hole Sponsor Form.
Finally, a Company donation form. If you would like to play, either single or
put a foursome in, please get back to me as soon as possible. For 4 years, we
have filled the course (144 golfers total) and have turned people away. If you
wish to make a donation, there is a form on the newsletter. If you have avenues
to corporate donations and/or corporate hole sponsors, these also are
appreciated.
I do hope you find it OK to send this to you. In this day and age, we all seem
to have our causes. This is mine. All I ask is that you do what you can.
Thank you so much.
Jamie
PS, you can learn more at www.codysquest.org (http://www.codysquest.org/).
Obviously the forms Jamie references aren't attached to this post, but if you are interested in reviewing any of them, feel free to email me at inlovewithdots@aol.com.